You wouldn't ask for help , you will feel like a failure, you will cry till you have no tears left, you will feel helpless, inadequate, and there will be days were life itself will feel impossible. and who could blame you for feeling like this ?, I can see it in your eyes the struggling and fatigue that is, I'm not judging you I am you or at least I used to be you.
You will feel guilt like you have never felt before, there is no benefit in self blame, so stop blaming yourself for things that aren't and weren't your fault you didn't ask for life to turn out the way it did, you didn't set out to be a sick mum so get rid of that guilt, Make decisions based on your own set of circumstances, yours is completely different to others, so stop comparing yourself to other mums , no two mothering journeys are the same, exactly like no two children are the same.You will learn you need to stop putting others first and take more time for you, you will learn to let what's supposed to be fall by the wayside, you will learn you need to stop being so hard on yourself and most importantly you will learn the fine balance of caring for yourself whilst caring for others.
The night feeds, which I found one of the hardest tasks ,you thought you were exhausted before you didn't know the meaning of exhausted till the 4 hour night feeds arrive. you prize yourself away from your bed trying to calm a screaming baby while the bottle cools and they few minutes feel like forever everything is so much worse with very little sleep, you hope and pray to even make it to 5 hours because really that extra hour would help and work wonders, each day you question will this ever get easier ? You would give anything to just have a full nights sleep. all though they times might feel like there never going to end they do end, cherish they moments because they don't last and you will miss and want that special moment of cuddling up on the sofa watching your baby fall asleep in your arms and you will give anything to experience that moment one last time.
Mums don't get sick leave I'm really sorry to be the one to tell you this you can't call in sick your on the job 24/7 with no breaks you might be lucky enough to get a nap ,but it's hard having eyes on the back of your head all day everyday your days filled with changing endless nappies and clothes yours and there's , fighting through the tiredness ,counting down the hours till bedtime, these days will get easier I promise you they will you find new ways to cope and deal with illness and being a mum it just takes time, its amazing how you learn to manage , as each day passes you do find new ways to cope and balance how you feel while being a mum, Rome wasn't built in a day and if you look at, it from that perspective your on the first step in the right direction to figuring out the balance of motherhood and illness because it all takes time.
There will be days you will feel Inadequate and helpless and that's ok every mum feels this way from time to time, it doesn't matter if your unable to do things, nobodies perfect, just because you can't do things or be there in ways you had originally planned or hoped doesn't mean the ways you are there, are any less valuable or meaningful,wiping the grazed knees, a cuddle reading a story,saying the words I love you are the most powerful things you can ever do as a mum.
'There will be so many times you feel like you've failed
But in the eyes, heart and mind of your child
Your not and never will be supermum or even mum of the year your human, chances are you wouldn't ask for help or even accept help you will try and be supermum, you will fear being judged help is for the weak,you aren't weak your a mum and a strong mum.
I guess what am trying to tell you is being a mum with a chronic condition, its no walk in the park, but you will find that balance you have to, because its the only choice you have in making the most out of the rubbish situation which is having a bad heart and being a mum.
The children in your life don't see you as sick mum they just see a mum they need and love, they don't need you to be perfect they just need you, your a supermum in their eyes, but even supermums need help and guess what that's ok.
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life of the inapporpriate tachy mummy/