Monday, 10 July 2017

How long is too big an age gap ?




I  have never had any regrets about having my first child young, I'm only 26 which means there's no fertility clock ticking to have another baby but the truth is at one point I dreamt of having that "perfect' age gap.

Just recently I came across an article on  'perfect' age gaps. how this perfect gap forms this lovely sibling bond were they grow up close and learn about the world together which then leads to the happiest of family's but the fact is having a chronic illness means life is full of uncertainty, there's times when illness shakes life up abit, times were you don't have any control or a say over what happens, as much as it kills me to say it there's times when illness dictates your life  and there's nothing you can do about it except strap yourself in tightly and let it but sadly it takes unpleasant situations in life for us to truly realise this.

 I'm a firm believer in one child's a lonely child and I've never shied away from explaining I would love another baby in the future despite my health problems, it's our life after all and its me that goes through pregnancy But a funny old thing started happening this year, particularly this year.

Suddenly times ticking, Kian's getting older, he's starting nursery soon, he's going to be out of nappies before you know it, now's the right time to add a new addition to the family.

Suddenly, it's going to be too big an age gap.

Suddenly were going to have to refresh our knowledge about looking after a newborn, suddenly were going to be out of the routine of looking after a baby.

I have known from a very young age that I wanted a big family, I had always imagined myself with two kids fairly close in age, I've also always been fixated on kids growing up together because that would create this sibling friendship were they grow up close and create precious memories together but a nice gap were its a slight breeze I keep some sanity and its not a complete challenge to get 3 of us out the door on time, in my head it would all be very precise, planned and perfect. I have also known from a young age that having heart problems would make pregnancy extremely difficult and labour would be like a running a marathon, one I've not trained for, one my heart might not cope with. I went through it all with Kian but Kian wasn't planned and the only way to describe a situation like that is going on holiday and your bags get lost in transit you just have to get on and enjoy your holiday with the clothes you have on your back because shit happens and you just have to deal with it ( you do understand I'm not comparing my unplanned pregnancy to luggage right ?)  I was pregnant so we dealt with the rubbish that came along with pregnancy and having heart problems until we got our reward at the end.

But planning it, well its different, your making that decision to put yourself through pregnancy and labour knowing its going to be tough, going back to the luggage would you deliberately choose to leave your suitcase at home and go on holiday with nothing ?  You might take stuff out the case  but that takes some organisation, planning what outfit you'll wear twice, making sure you've got all the essentials you need and while I desperately want that 'perfect' age gap physically having so many health problems its the whole fear of the unknowing not to mention the amount of planning it takes and I'm not just talking simple terms like having an ovulation app dictate your sex life  its having to plan so far ahead making changes left right and centre to nearly every aspect of your life, from stopping medication and treatments that help you lead a normal life to trying out every trick in the book to help lower your blood pressure its simply not as straightforward  as removing clothes from a suitcase as much as I wish it was.

 My pregnancy was hard not in a sense I had bad sickness or anything like that in fact none of it was physical, yes my body was carrying and growing a baby, yes my heart problems caused my blood pressure to rock through the roof and I spent most of it trapped inside a hospital room ( waiting on my  luggage to finally appear)  but strangely my health didn't deteriorate in fact if anything my health improved although it came back with a vengeance when Kian was only a few months old, but  its the hard decisions your faced with during pregnancy, I mean having to stopping drugs that help you function because there's no research on them with pregnancy but here's a drug that stunts the baby's growth.  I remember reaching 35 weeks going for a scan and hearing that Kian had stopped growing which was so heartbreaking to hear even though we knew that was always likely to happen anyway but nothing can prepare you for when it does happen and something no parent should ever have to go through is having to decide wither to be induced early because the chances of stillbirth are higher or to give your baby that extra chance to grow its life shattering. For me it wasn't a question, being induced and having him small but alive was the choice I made except ironically he stayed put was born late but healthy yet he also didn't grow anymore either despite having the extra few weeks inside which I think truly shows how much of an affect high blood pressure and beta blockers have on an unborn baby.

And while I don't usually share that detail with just anyone, I have noticed that suddenly me becoming pregnant  again has become a major topic this year as kian's 3rd birthday draws closer.

all the advice of having that perfect age gap I listen to and as more and more  people I met during prenatal classes with my first fall pregnant with their second  I have become more and more the odd one out , The only one who's not rubbing a bump or sitting at the toddler area with a baby strapped to my front.

Personally it bothers me not because I wish people would stop giving me their opinion about this perfect age gap but because why does it Matter ? What's really the huge deal with this perfect age gap ?


 Is it not ok to have an imperfect age gap ? surly it's only imperfect if you let it be


I don't know why a year ago having another one is too soon your supposed to enjoy your first, before having a second yet suddenly a year on now's the perfect time.

I love being a mum, love a full house and I do feel some grief that because of my health problems I'm not providing my first born with this 'perfect' gap, were he creates this closeness with another and doesn't grow to resent them but with so many of my friends already on their second even third me and Kian are never far away from a baby a toddler, or a nippy VTech toy and right know that fulfils us and at the end of the day we wave goodbye and were content with the life we have right know as a family of 3 despite everyone giving their opinion on this perfect age gap.



I don't know why this is , I don't understand because surly not one age gap fits all ? I also didn't know there was an expiration period on having a second surly its up to you to figure out what works best for you and your family but yet here we are too big an age gap but were ok with that regardless of how long that may be so everyone else should be to.



                                                    
 
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Thursday, 22 June 2017

When your health declines and there's nothing you can do about it




I write this post from hospital, I have been in and out since my last post Firstly thank you so much for all the beautiful, supportive and caring messages I've received on social media I've been feeling sorry for myself and my moods went to pot but your words really brightened my day.


So after weeks of struggling with retention and a bladder infection I was admitted into hospital for iv antibiotics and fluids to kick the butt of bacteria lurking inside my body. I don't think I have ever felt so unwell, Friday night I was abit off but I put it down to not feeling too well generally and being really exhausted, well by Saturday morning I woke up sweating buckets. The district nurse called a doctor out who both suspected I had an infection, I was giving oral antibiotics but by Sunday morning I was shaking, unable to keep my eyes open and also being violently sick Dougie took one look at me and phoned out of hours who told us to head straight to hospital.

So I'm still here receiving two different types of antibiotics intravenously to try and knock the infection down to a level were it doesn't need such aggressive treatment, I'm still in a lot of pain and feeling thoroughly exhausted.

My bloods are showing the levels are dropping which is good, my temperatures slowly coming down along with my heart rate, although I have to admit I'm concerned that I'm still feeling so rubbish despite knowing things are improving but after speaking with the doctor he's told me that's normal and that I won't feel better for a while because of how severe the infection was.



I have a catheter back in as my bladder went back into acute retention 2 weeks ago, I've cried so many tears over this happening again because I'm gutted it's something I hoped was just a one off but it's not, in fact it's happened twice I'm waiting on an appointment at the clinic to trial without the catheter again but having an infection means it's been delayed because I'm more likely to fail whilst the Infections on going, If the trials not successful then the next step is more tests and also being taught to intermittently self catheterise myself.

I love when you think you've had the most embarrassing tests known to man, your then told you have to pee out fluid whilst a team of people take images and measure the strength of your bladder the joys Of having bladder problems though !

But anyway I have something else I want to open up about, I don't even know we're to start with it all but I feel now's a good time.

For a while my body's been doing things out with my control, things I can't really explain. A condition that's been mentioned a lot which is becoming poison to my ears is multiple sclerosis (Ms) I first heard this back in December from a neurologist after a locum gp noticed I had weakness,  along with paralysis and a few weeks later a routine eye test detected I've lost vision in my right eye but he couldn't be 100 percent certain until they done an MRI scan. Having a pacemaker means I can't have one, my leads are compatible but my box isn't. After a long discussion and alot of communication between my cardiologist and the neurologist my cardiologist put the cards on the table that he was happy to change the box, from his point of view it's a simple box change but for me it's not there's the risks, another Scar, the recovery afterwards but also because I've had an infection in the past means my chances of catching another one are higher so with all this considered the neurologist decided to keep me under his care but to leave things as they were and if things changed then we would go down this route But Yesterday this came up again as the urologist wants to send me for one too He feels more tests on my bladder probably aren't going to give answers which is why none are being done at the moment I've been told the thing with ms it can cause relapses and my bladder going into retention could be like a relapse as all the tests I've had so far show my bladders healthy that perhaps my bladders not the problem it's my brain not giving the correct signals to empty.

Where do I go from here ?
and I honestly don't know, I'm stuck with the question of having to go through more surgery to change the box so I can have the scan and hopefully rule out ms or leave it and see how things go ? something Ive spoken about with Dougie is at what point do you decide now's the right time ? Is there a right time ? At what stage do you leave it till something else happens, something that's another sign of ms but at the same time if it's ms it's not like there's a cure, getting a diagnose isn't going to change or stop everything that's happening to my body, do I wait 10 years till my box needs changed anyway ? I so wanted to feel relieved when they found something wrong with my bladder, because that meant there's still that possibility it's not ms but each time they find nothing I loose that hope.

People keep telling me to stay positive because there could be a million other reasons to explain why all this is happening and this is true but until it's ruled out it's a shadow hanging over me. I am positive in that I'm surrounded by people I love, who are ready to help me fight when I get weak and tiered they help me stay strong, just because I feel fear doesn't mean I'm not brave, just because I can see the negative doesn't mean I'm not positive, I still choose to see the positives even though I'm surrounded by negatives some days though it's just a little bit harder to find that tiny bit of glimmer... but I will.

Poor Dougie is dealing with Kian, work and home life as well as my emotional breakdowns I'm so upset about ruining Father's Day and being a burden to him that I'm actually being MORE of a burden stressing about it all

He brought Kian to see me yesterday after asking if I wanted him to see me like this, I said Yes because at the age of 2 and a half he doesn't understand fully but he understands a lot, he knows I'm sick and I wanted him to know I'm getting better. Seeing him lifted my mood although it was hard to hear him say "no more tears mummy" because it should be me as his mum telling him that, me picking him up when he's fell down not the other way around but hearing that has made me try hard to not cry especially not in front of him but it is Hard I miss him I miss my own bed And I guess I miss my old life, my life before illness took over I guess I've reached this wall we're I've just mentally had enough.

I know right know these feelings are temporary, it's just a slight blip even if it's a lot bigger than usual I will pull myself together, but there you are I've said it those two words that I've not spoken since last year, those 2 words that recently the doctors are saying a lot and saying them myself makes me so bloody scared.




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- Posted using BlogPress from my iPhone

Wednesday, 5 April 2017

Another piece of me is broken right now.





I've shared with you all every high and low from my heart journey in the past 3 years, from tears to joy, fainting to ablations, pacemakers to depression even photos of my scars on my chest But I'm struggling to talk about something that even I Inappropriate Danielle is finding difficult.

So why is it I'm finding it hard to talk about what I'm going through right now ?

Truthfully I'm embarrassed, my bladders went into retention, it's stopped working on its own.This is really uncomfortable makes toilet trips impossible but the hardest part of it all I'm so desperately sad and embarrassed, I have a catheter and a leg bag because I'm physically unable to go on my own now.

Why this slight bump in my health journey feels so much worse than anything that's happened before I have no idea, I suppose it's because it's personal.

Maybe I'm worried people will laugh, make jokes, perhaps I'm concerned this is too private to talk about on my blog ? But I honestly feel like I need to be brave for others with this in the way I was brave for others with ist.

When I say the words 'I can't pee', out loud, I get a huge lump in my throat, my voice changes tone, my heart flutters and my cheeks beam bright red.

Dougie said to me after we got in the car from the hospital, I don't understand everyone gets the urge to pee and eventually they pee, your bladder can only hold so much before eventually it bursts and you'll go. I felt like I was going to explode but nothing happened, even running the tap leaning desperately forward squeezing for over 10 minutes nothing was happening except pain.

Emotionally it's knocked me I feel nothing but sadness, everyday this tube is inside its slowly absorbing my independence, its draining my happiness  I just keep thinking I've had enough health issues to last me a life time surely I catch a break soon,it just feels so unfair.

I'm trying so hard to keep my positive thinking hat on, maintain my happy go lucky attitude but I can sense that my family know it's forced that my smile isn't genuine, my pathetic jokes about the perks of not having to get up to use the bathroom don't ring true. I just can't bring myself to admit that I'm struggling, I don't want to talk about my lazy bladder how its stopped working and how I can't pee on my own.

God this isn't like me normally my family give me a row they tell me you shouldn't share anything that you would be to ashamed to hear read back and normally I have to rack my brain to think of something so it's ridiculous that this has throwing me so much, it's pathetic that I feel shame over a normal body function but guess what I feel shame because something as simple as peeing I can't do on my own right now.

I'm waiting for an emergency appointment to see urology, where I will be giving a scan and a scope to look inside my bladder which will hopefully give some answers, their also going to take the catheter out and see if my bladder will work on its own again, but all I can think about is what if it doesn't ? How long will I need to walk around with a tube inside my bits and a drainage bag attached to my leg for ?

It's horrible I can't wear anything decent because of the bag, I'm spending everyday in my pyjamas   because I'm too embarrassed to go out, I'm so self conscious I know nobody can see it underneath my trousers but I feel like they can, I spend every evening changing the bag over to a bigger one, throughout the day I'm having to drain it , the bladder spasms are painful it's like your body doesn't like having tubes were it wouldn't normally have them and because of the spasms it's causing urine to leak outside the bag this is another reason that's making me scared to go out ,secondly because of that  I'm having to wear incontinence pads to control the leaks.

Bladder retention normally happens to older men who have enlarged prostates so why it's happened to me is abit of a mystery but hopefully I get some answers soon. I got my impacted wisdom tooth removed last week which I found to be a traumatic experience and I guess sometimes our body's react to stress and trauma in strange ways.

The thing that makes me want to share this post is that I've learnt bladder retention can effect anyone with or without  reason some due to childbirth, medication or cancer, and I'm pretty confident many of them will feel embarrassed and shame like I do but I guess I'm trying to carry my experience like a banner to help others know it's ok to feel this way.

Till I'm able to pee on my own again  I'm putting a smile on, trying to get through one day at a time and I'm trying so hard to not let this sadness and embarrassment take over even when it feels like it has the power to do so.

                                                                              
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Monday, 27 February 2017

Sorry, Not Sorry that I don't fit in.





Hello you lovely bunch its been a while I feel like I owe you all an explanation but before I start I don't really know were I'm going with this blog post or if any of it will make sense I just need a chat I feel like I just need to put pen to paper and write.


  When I first started blogging it was for myself a diary so to speak, a place were I could take all my thoughts and feelings and put them in this small corner, my blog, It became a way to free my mind, free in a sense because they thoughts and emotions were no longer locked inside my brain but instead a page, a page I could open and shut when things became tough with my health. My mind needed  freedom because truthfully I didn't know how to cope with the emotional scars my illness brought but through writing I was able to process those things that were happening, things that I found difficult to explain.


  Most of the time I'm hit with inspiration to write even if what I write is rubbish, to me it still means something but recently I haven't had that, before Christmas I had lots of posts drafted up ready to publish but I switched from Mary Poppins to Cruella De Vill, I was in such a bad mood about blogging, I'm talking a full blowing pmt outburst were I sat wondering what am I doing, do I suck at writing, am I making a fool of myself, are people laughing at me criticising my writing thankfully that mood passed and my feelings towards blogging when back to normal.


  The thing is I've always knowing people blog for all sorts of different reasons whither it be to make money, to receive free stuff, or because they love writing , whatever that reason may be, they blogs are all grouped into niches, I've always felt like the black sheep, like I don't really belong anywhere part of me longs for a niche to welcome me with open arms, a group that will encourage and support me to keep on writing  but then the other part of me doesn't. I admit I write tiny snippets from all sorts of different niches but I don't want to dedicate my whole blog to one niche because that's not me that's not the reason  I started this blog, I  know barely anything about blogging truthfully  I didn't even know niches excited until a few months ago.

 Back in October when I wrote for  Bio-oils scars uncovered campaign I started receiving email's offering me free stuff in return for posts ,I sat for many weeks toing and froing with the whole idea, I started wondering was I missing out since I was refusing to entertain the idea of sponsored posts and brand collaborations. In fact several other bloggers told  me I was missing out that I could earn easy cash doing something I love and in return drive more traffic to my blog its a win all round right ?  I'm not going to lie writing for Bio- oils campaign drove an overwhelming amount of traffic which was something I hadn't experienced before my inbox full of lovely responses from others showing pictures of scars and a story behind them something I took great comfort in,  I wasn't the only one looking in the mirror and feeling shit about my scar battered body but writing about things like vapour pipes and coffee body scrubs just isn't my cup of tea.

 The thing is I don't want to loose sight of why I set up this page I don't want to write content for content sake so I can be accepted in the world of blogging to be welcomed into a niche or to even gain a high rank on Goggle, ( I actually have no clue how any that stuff works btw)  it's pretty simple  I don't want to get sucked into blogging to make money or to receive  free things  it's like I've been offered a job promotion I didn't apply for I wrote for the scars uncovered campaign because I love writing about things I'm passionate about its no secret that  I hate my scars not just because they look ugly it's a painful reminder of my past but a past I felt could help others, help them accept their scars and even their past. Through that post I was able to vent emotionally how my own scars affected my life and what they meant to me. But I didn't get paid for it I got free bottles of bio oil as a kind of payment for supporting the campaign the rest were sent out as a giveaway to help others come to terms with their ones too.
 

For anyone who doesn't know  I started this blog 3 years ago the day my second heart ablation failed it sounds crazy I know not many people sit after surgery and think I know life's shit lets write about it but I did. Anyway here I was in hospital  staring out the window watching the world go by literally passing me by as I lay in hospital a blubbering snottery mess, I felt like I had no real place in it. All these people were outside, walking, smoking, chatting in little groups putting money into the parking meter I felt like they all had a life a purpose all I had was a shitty diagnose with no hope of a cure, I was grieving over a life I wanted, I was mad, pissed at life  words just started flowing It didn't have a reason, it served no purpose I  just took every piece of my heart that felt  broken and shoved it into words they words eventually became the posts you read here. Weeks and months passed were anything I felt anything I wanted to say I used it as an outlet for my emotions I admit some of the posts I published I'm embarrassed about I've even swayed with the whole idea of hitting delete but I haven't because there all reminders of hard times during my heart journey were I look back and think god I remember that, that was shit and then I move on I move on with a sense of delight because it's in the passed a passed I lived survived and came out the other side 10 times stronger.

 Sometimes mentally I struggle, I  just need a little swift kick up the backside my blog gives me that, I find myself reading back just to remind myself how far I've come in a strange way I still  find things hard to believe, I still struggle to believe that when I was pregnant I got induced 3 times 3 weeks early and my darling stubborn Kian was still 2 days late because seriously does that even happen ? It did, because it happened to me, happened all because of my shirty Inappropriate heart But someone somewhere might have that same shit luck (if you can call it that baby's are blessings)  but they might just land on that page it might be all they need to hear that day just to stop the tears flowing. I know it now makes me laugh.

  Its funny because people say its all about your attitude towards life, you just need to be positive, as cliche as it sounds  turn that frown upside down, they'll tell you everything happens for a reason, to be grateful for the life you have because some people have it so much worse but at that point in true Danielle drama style I felt like nobody could be worse, at the age of 22 I was diagnosed with a heart rhythm problem and told there's nothing that can be done they didn't know how to fix it, if they ever could, I was going to spent the rest of my life calling into work sick never having enough money to pay the bills pondering over how crap life is mostly from the floor with my legs propped up higher than my heart but strangely fast forward  a year later it became so much worse if only back than I knew that But the thing is I did just that I turned that frown upside down and started writing to help others and I haven't stopped doing that.


 What I didn't realise when I first started blogging  was how much it would help others faced with the same condition, through the struggles I shared  I was always met with positive comments, words of encouragement, gained 1000 of likes even made new friends. My inbox was and still is always full of lovely messages asking all sorts of advice from ablations to anxiety, pacemakers to pregnancy the list goes on but I love it.  It was at this point I realised I could really help others, I could give others all the advice and information  I wish I had knowing back then but didn't I'm no heart expert I'm not even a doctor but by sharing the things that happened, the obstacles I  came across with having this shitty condition  I could give support, the support and shoulder I didn't have but wished I had all those years ago. I've come to love the feeling of writing  knowing it can help others going through the same struggles because truthfully I never want anyone to feel like I did 3 years when I started this blog I was a wreck I was alone, scared stuck in this invisible illness bubble were I felt like nobody could understand what it's like to live a life with your heart controlling it day in and day out, in fact the day I was diagnosed I hadn't heard anyone else refer to their heart as Inappropriate.

 What I recently realised was I'm not only helping others but advocating for heart rhythm problems as a whole I have a rare condition that many medical professionals don't understand, some haven't even heard of it I've been on the end of doctors harsh ,rude comments so many times, the end were you start to question are you really sick or just crazy But I've decided the more I write the more awareness that brings and therefore I figured less ignorant individuals in the world.

 However I guess what I'm trying to say is screw fitting in its nice to be different this tiny place on the Internet is an outlet for me it's kind of like therapy when my heart goes haywire, I'm sorry that I'm not sharing beauty hauls or taking perfect food pictures just so I can fit in, if that's what your after you've came to the wrong place. I'm a blogger without a niche. I wear my heart on my sleeve I don't hide anything in real life or on online, I put myself and my blog out there not just abit I fully put it out there for people to judge, criticise , pull apart but to help others, to raise awareness I figured if I don't advocate for my condition who will ? I'm the blogger without an identity, I'm opinionated, but honest I'm not your perfect size woman, or plus size model, I'm a mum with a heart rhythm problem, my mouth is just as inappropriate as my heart is but I'm just me, Danielle

 So here I was sitting last night scrolling through all they emails sending the same reply to them all thank you but no thank you, it was great because suddenly I felt a sense of relief  I found myself staring at my laptop missing this blog missing writing and remembering why I started it all in the first place and fitting in isn't  one of them.

Sorry, not sorry that I don't fit in.


                                                          
 
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Thursday, 29 December 2016

My sweet little boy if only you could understand a kiss can't make everything better





The long list of words I mutter daily to my 2 year old is incredibly long.

'I can't it hurts
running away makes mummy very sad
No we can't go upstairs
Stop, Mummy can't keep up
No
Will you just behave
Don't run off mummy cant catch you if a car comes
I need you to slow down'

'Please slow down little one'

Since my little boy Kian started to walk the day of his first birthday he well and truly made his entrance in style he came strolling through swaying the unsteadiness in his legs a huge cheesy grin across his face, his first proper steps he was determined to run before he could walk I watched with such delight, a proud mummy moment, yet suddenly out my mouth came the words

'Please slow down'

From that day is speed of walking and running grow exactly like he did as a mum I watched and cherished these moments, everytime he ran with a huge smile on his face that brought an even bigger one to mine as he copies Mr Tumbles on the television touching his nose blinking three times jumping high in the air my heart bursts with so much pride,ever fall I kiss the graze on his knee better the tears stop flowing and he replies all gone, his arms and hands reach out to show me it's all gone.

'Please slow down' were the dreaded words I spoke a lot

From rushing up and downstairs, running along the street to the park, taking off like Wreck it Ralph in the supermarket his short but able legs  always full of energy, his mind always racing with mischief everywhere we go is always full steam ahead even to the toaster in the morning.

'Please slow down mummy can't keep up'

Having arthritis in my knee winter and the cold is a huge culprit at making my knee feel worse everything we done in the summer, the long walks to feed the ducks doesn't happen, going to toddler groups I sigh its shut as I secretly stand at the washing machine and cry for telling little white lies, everything on our to do list gets moved to the don't do list shoving him in the pram and walking slowly is now how the eventful shopping trip starts 'bad mummy' he shouts loudly the once happy face replaced with sadness the guilt hits hard eventually I give in.

'Please slow down' I would still shout trailing at the back passers by shaking their heads moving trolleys to avoid hitting him, physically I cant keep up he's faster than me I sobbed one night I can't do this I can't deal with strangers judging me staring because I let him run wild. He doesn't understand was a phrase I started to hear a lot he's just a baby having fun, learning I would bite my tongue longing for the day he did understand, longing for the day it would all get easier.





I'm still learning how to approach these moments of mummy 'can't', explain to him why ? how do I tell him that mummy has a bad knee and one day will need a new one, how do I go about telling him mummy has a pacemaker inside her chest ? do I let him feel it ? show him its different to help him understand, do I tell him mummy's a bit like a superhero with a magic battery ? make it sound fun, special, ? every superhero eventually needs a new knee. Yet how can I make out mummy's this amazing superhero yet she cant even walk up a flight of stairs properly let alone  pull out webs from her hands and climb up the side of tall buildings, how can I eventually tell him when the time right all batteries run out exactly like the phone he puts on charge to phone daddy at work does, expect its not as simple as plugging mummy into the wall, without him fearing it, without him asking too many questions giving answers that I never want to explain, machines can go wrong like the battery's which leaked in his favourite toy dinosaur, that caused him to cry for days when I told him it was broken and we needed to get a new one but yet its important, its important to me that he understands that mummy's not being bad, boring or grumpy she simply can't, so he learns god forbid something goes wrong he understands it will all be ok with a simple few clicks from a special computer at the hospital a superhero always springs back but even the greatest superheroes need a rest sometimes.


 'Everyone has a part of themselves they hide even from those they love the most'


Kissing his forehead goodnight I sat on the edge of his toy box bad mummy stuck on my brain, I will try little boy, really I will try, to stop being boring, grumpy, I will let you run around free, let you have fun, let you be curious, let you learn, forever I will keep this secret locked inside your eyes tightly shut to protect you from ever knowing that mummy's no superhero she couldn't be any further away from a superhero if she tried, mummy's more like Bambi on ice who most days can barely put one foot in front of the other.

I promise I will try and never say slow down again, I whispered to him that night because my sweet little boy you will always be quicker than me.

I admit I'm still adjusting to this accepting he's growing up, accepting it's always going to be a challenge, I'm still learning how to control the fear when he takes off and I can't keep up, god I'm even trying to stop caring what others think when I look like a mum who has no control over her son, I should of knew this day would come but I didn't in the whirlwind of the first year of being a new mum I didn't ever think that far ahead unfortunately there's no textbook with a how to guide on keeping up with toddlers when you have bad knees and a battery powered heart.






A few days later in an ironic but sad sort of way, waiting for his Nana to pick him up I explained mummy had to see the doctor with her sore knee grabbing his shoes he gave me a little wave his face full of delight and smiles for his afternoon full of adventures with someone who can run and jump, who can do everything he wishes mummy could do but can't, as he went to run off he stopped in his tracks smiled leaned down and kissed my knee all gone he said.

As he went out the door my heart ached for the wrong reason he did understand in the mind of a 2 year old a kiss makes everything better he had only learned what I had taught him a kiss made his knee better so it should make mummy's better too, its so true he doesn't understand that a kiss cant fix everything but my sweet little kian how I wish you didn't ever have to understand a kiss cant always fix everything but sometimes a kiss from the right person is sometimes all you need, I will always keep you believing kissing a sore knee really does make it all gone.

                                                                         
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Sunday, 18 December 2016

Two Simple tips for an Ist sufferer at Christmas






Christmas is full of joy and happiness from Christmas parties to Christmas markets,Santa's grotto With his cute little elves and reindeers, the cliche Christmas films that bombard the television, being aloud to eat and drink your body weight in chocolate and mulled wine, Christmas has a special meaning to us all.

Christmas is just round the corner, Its the one time of year to hang pretty stockings up on the fireplace, tie glittery tinsel around the tree, cook and have your home smelling of mince pies and cinnamon, its officially the most wonderful time of the year, you sit by the fireplace with a mulled wine in your hand, tucking into your pintrest picture gingerbread house as Christmas trees overpower social media, every Channel you flick through plays a Christmas movie, from love and mistletoe, to snow and magic, Kindness and goodwill, These movies show us what Christmas is all about but if you didn't already know, I'm sorry to be the one to tell you this isn't always the case.lets get real me and my husband definitely don't communicate with our hearts even after 5 years of marriage, I live in miserable cold Scotland but I've yet to see a white Christmas, nobody EVER in my street decorates with so many lights that you can see their house from space why ? Because movies aren't real life, they show us high unrealistic expectations about Christmas. Christmas is pretty stressful and overwhelming for the average person so for those living with Inappropriate Sinus Tachycardia or any chronic condition for that matter Christmas adds more stress and worry  to our already tachy hearts it pushes our bodies and our ability to cope to a completely different level.


Christmas to us is a bit like a coin, if we grab our party shoes and head to the Christmas parties, we sure will pay for it later and I'm not just taking a hangover in the morning or an empty purse, if we hit the busy shops for Christmas shopping, its like recovering from minor surgery, the heat from the fire makes you want to lie on the cold floor with your feet above your head or is that just me ? but on the other side of the coin, if we don't do all these things we end up feeling isolated, those closest to you struggle to understand that our fast hearts can't stand in long queues in a hot busy shop or the amount of alcohol and chocolate you 'should' consume since its Christmas sets our hearts off, if we don't make it out to the shops and give that perfect gift or join the secret Santa club a huge pat on the back for being a bah humbug.


Christmas can bring so much resentment and disappointment that our Christmas isn't quite turning out exctly the way we want it to, exactly like the way it does in movies, Christmas is more daunting than joyful trust me I know. Christmas to me is ultimately about family and laughter giving than receiving being thankful and grateful for everything I have, but since family is such an important thing to me at Christmas and  I'm not just talking giving superficial things like gifts, I want to spend it with all of them, give a large chunk of myself to sit round the breakfast and dinner table and unless I cut myself into 4 pieces its never going to happen The pass few years  have been spent dividing time between them all rushing back and forth trying to please everyone, Christmas didn't feel special it felt like a chore. This year I decided it was going to be different it wasn't going to feel like a chore because it shouldn't, instead I tried to do everything to make it magical for a 2 year old but I didn't drag my backside to the shops quite the opposite I had to drag my sorry ass' to the doctors followed by the hospital because I've now been stuck in bed suffering from dehydration and an infection with my heart going even more crazy, 'take it easy you don't want to be ill for Christmas' the doctor said  I did have to slow down, burning the candle at all ends trying to make Christmas perfect is stupid,health is more important than any Christmas dinner or gift.

Health is the greatest gift anyone could ask for, a gift that we can give ourselves if we allow the exceptions of what Christmas should be like to fall by the wayside, real life isn't a movie and you just need to remember that, I definitely had to remember that, so its brought me  to share, these 2 simple tips it might not cure our health but mentally I hope they help of course just don't forget to spread some Christmas cheer by singing loud for all to hear.

 Your not Nigella Lawson as much as you would like to be

In a ideal world we all want to be as perfect as Nigella Lawson in our tight red dress presenting the best Christmas dish, washed down with Christmas cup cocktails followed by Nutella cheesecake, My husband has a huge crush on her so the pressures on every year for me to be perfect Nigella but sadly that doesn't always work when you don't have the time strength or energy there's no harm in picking up a turkey from the supermarket or my good old favourite pick up the phone and order a Chinese. In my opinion you don't always need a Christmas dinner to complete Christmas when your surrounded by family and love.


Give from the heart, it doesn't cost a penny.

Gifts from the heart are often cherished more,give yourself in ways your able,spend quality time with those you love from the comfort of your own home, those who care will understand and those who don't, don't matter, Christmas is all about kindness isn't it? Even frame a beautiful picture that you know will earn a special place in someone's heart and home if you can't be there in person at least a happy memory will.

Most importantly no matter how your heart is feeling don't let it ruin your Christmas if you surround yourself with laughter and kindness its a sure way to take your mind off how fast its beating.

Happy Christmas when It comes  ! Xx








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Wednesday, 16 November 2016

Trust is like paper once its been crumpled it can't be perfect again







What's brought me to write this post is I need another operation, god even when I say that word I feel sick, my palms start to sweat, my heart races and I want to cry. As soon as she pulled the x rays up on the screen and asked me to look at them I knew what she was going to say before she even spoke.

The surgery I need is pretty minor, my wisdom tooth is impacted and stuck in my jaw bone so it's having to be surgically removed but my heart problems smacked me in the face, their concerned my heart will go crazy, it beats crazy fast all the time anyway so I guess it wasn't rocket science to figure out, that it's not going to behave during surgery, so I have been sent to another hospital miles from home but one were there's doctors who are able to give me medication to knock me out so I'm not aware of the surgery,You would think this oral surgeon would have gained my trust taking all these precautions.

She asked if I get anxious about going to the dentist, I didn't want to act like a big baby so I asked her if there was anyway it could be left, I told her my mind and body don't feel ready for another operation, but the damage has already started, because my wisdom tooth is impacted its starting to cause tooth decay and it's also starting to rot the healthy tooth next to it so not only does my wisdom tooth need to be surgically removed I will also have to go back to the dentist and get root canal treatment on the tooth next to it so leaving it wasn't an option.

As she pointed at the x-ray I was suddenly reminded of everything that went wrong with my heart, the nerve damage I live with everyday, my heart being damaged during my ablation, where my tooth is, its beside a huge nerve so there's a risk of permanent nerve damage. I find it so hard to trust medical professionals, I don't mean it in a bad sort of way, but I always believed they fixed things, made things better, I find it so difficult to let down my guard and trust everything will be ok, I guess my trust issues stem from everything with my heart.


 I do forget all the bad things that happened with my heart but its like my body remembers, it keeps it stuffed away until something triggers it. Whether it be a sound, something I see, a word or a person it awakens me to it all. Right now it's not even about needing an operation, or the pain after its everything that happened in the past, I've built up a wall, a huge defence mechanism to ensure trust isn't lost again but needing another operation I'm having to tear that wall down and its something that I'm finding incredibly difficult. truthfully I'm terrified something will go wrong.



Going through so much getting ablation after ablation that didn't work, it changes you, getting a pacemaker it changes you, each tablet changes you, everything that goes wrong it changes you, you lose hope but you start to loose so much trust, you feel like your constantly shoved on the end no matter how much you kick or scream, on the end were you have to put trust in people to fix you, to make you better, we constantly have to let down our guard, put our full trust in others and its scary.

When I got my pacemaker I wasn't crying because of the pain or the experience, I was in tears because I heard 'trust me he's a good cardiologist', I heard that from so many doctors, but yet he couldn't fix mine, he tried  3 times and eventually damaged it, a huge risk that was put out there but one you don't think will actually happen, so how can you trust when trusts already been broken.

Trust is something that can be hard for a lot of us, the other day my friend who's a nurse, ironically she works in a surgical ward she sees people get fixed, get better all the time, sick people put their trust in her everyday but the funny thing is she also needs surgery and over a cuppa she asked me how do I do it ? how do I trust everything will be ok ? how do I manage to put trust in others to look after you? it brought me to notice everyone has trust issues when it comes to our health, when it comes down to trusting doctors to fix you, make you better while you're in a vulnerable state its terrifying.

Trust is like paper once its been crumpled it can't be perfect again but if I've learned anything about having so many operations its just how strong we are as human beings, we DO put our trust in others despite how hard it all is, we dig deep and find the strength and courage within us because we have no choice our body needs this now but we know it wouldn't be forever, most importantly we have to surround ourselves with people who have gained our trust especially when trust is so hard to earn, when you surround yourself with the right people nothing can truly go wrong even when you fear it all will.

As my pre op to make sure am fit for surgery draws closer, (it's the start of December) I'm worrying the actual surgery will be before Christmas. I feel this huge chunk of happiness drain out of me Christmas is a time to celebrate and be close to loved ones and a lot of my Christmases have been spent being unwell or recovering from surgery, it was only last year I was stuck in bed with an infected pacemaker part of me thought I would be ok this Christmas, I would be able to enjoy it, I didn't think another operation would be on the cards, I'm devastated by it, there's always something else, always something wrong with my body, sometimes it feels like there's not a part of it that's right.





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