Wednesday, 5 April 2017
I've shared with you all every high and low from my heart journey in the past 3 years, from tears to joy, fainting to ablations, pacemakers to depression even photos of my scars on my chest But I'm struggling to talk about something that even I Inappropriate Danielle is finding difficult.
So why is it I'm finding it hard to talk about what I'm going through right now ?
Truthfully I'm embarrassed, my bladders went into retention, it's stopped working on its own.This is really uncomfortable makes toilet trips impossible but the hardest part of it all I'm so desperately sad and embarrassed, I have a catheter and a leg bag because I'm physically unable to go on my own now.
Why this slight bump in my health journey feels so much worse than anything that's happened before I have no idea, I suppose it's because it's personal.
Maybe I'm worried people will laugh, make jokes, perhaps I'm concerned this is too private to talk about on my blog ? But I honestly feel like I need to be brave for others with this in the way I was brave for others with ist.
When I say the words 'I can't pee', out loud, I get a huge lump in my throat, my voice changes tone, my heart flutters and my cheeks beam bright red.
Dougie said to me after we got in the car from the hospital, I don't understand everyone gets the urge to pee and eventually they pee, your bladder can only hold so much before eventually it bursts and you'll go. I felt like I was going to explode but nothing happened, even running the tap leaning desperately forward squeezing for over 10 minutes nothing was happening except pain.
Emotionally it's knocked me I feel nothing but sadness, everyday this tube is inside its slowly absorbing my independence, its draining my happiness I just keep thinking I've had enough health issues to last me a life time surely I catch a break soon,it just feels so unfair.
I'm trying so hard to keep my positive thinking hat on, maintain my happy go lucky attitude but I can sense that my family know it's forced that my smile isn't genuine, my pathetic jokes about the perks of not having to get up to use the bathroom don't ring true. I just can't bring myself to admit that I'm struggling, I don't want to talk about my lazy bladder how its stopped working and how I can't pee on my own.
God this isn't like me normally my family give me a row they tell me you shouldn't share anything that you would be to ashamed to hear read back and normally I have to rack my brain to think of something so it's ridiculous that this has throwing me so much, it's pathetic that I feel shame over a normal body function but guess what I feel shame because something as simple as peeing I can't do on my own right now.
I'm waiting for an emergency appointment to see urology, where I will be giving a scan and a scope to look inside my bladder which will hopefully give some answers, their also going to take the catheter out and see if my bladder will work on its own again, but all I can think about is what if it doesn't ? How long will I need to walk around with a tube inside my bits and a drainage bag attached to my leg for ?
It's horrible I can't wear anything decent because of the bag, I'm spending everyday in my pyjamas because I'm too embarrassed to go out, I'm so self conscious I know nobody can see it underneath my trousers but I feel like they can, I spend every evening changing the bag over to a bigger one, throughout the day I'm having to drain it , the bladder spasms are painful it's like your body doesn't like having tubes were it wouldn't normally have them and because of the spasms it's causing urine to leak outside the bag this is another reason that's making me scared to go out ,secondly because of that I'm having to wear incontinence pads to control the leaks.
Bladder retention normally happens to older men who have enlarged prostates so why it's happened to me is abit of a mystery but hopefully I get some answers soon. I got my impacted wisdom tooth removed last week which I found to be a traumatic experience and I guess sometimes our body's react to stress and trauma in strange ways.
The thing that makes me want to share this post is that I've learnt bladder retention can effect anyone with or without reason some due to childbirth, medication or cancer, and I'm pretty confident many of them will feel embarrassed and shame like I do but I guess I'm trying to carry my experience like a banner to help others know it's ok to feel this way.
Till I'm able to pee on my own again I'm putting a smile on, trying to get through one day at a time and I'm trying so hard to not let this sadness and embarrassment take over even when it feels like it has the power to do so.
Monday, 27 February 2017
Hello you lovely bunch its been a while I feel like I owe you all an explanation but before I start I don't really know were I'm going with this blog post or if any of it will make sense I just need a chat I feel like I just need to put pen to paper and write.
When I first started blogging it was for myself a diary so to speak, a place were I could take all my thoughts and feelings and put them in this small corner, my blog, It became a way to free my mind, free in a sense because they thoughts and emotions were no longer locked inside my brain but instead a page, a page I could open and shut when things became tough with my health. My mind needed freedom because truthfully I didn't know how to cope with the emotional scars my illness brought but through writing I was able to process those things that were happening, things that I found difficult to explain.
Most of the time I'm hit with inspiration to write even if what I write is rubbish, to me it still means something but recently I haven't had that, before Christmas I had lots of posts drafted up ready to publish but I switched from Mary Poppins to Cruella De Vill, I was in such a bad mood about blogging, I'm talking a full blowing pmt outburst were I sat wondering what am I doing, do I suck at writing, am I making a fool of myself, are people laughing at me criticising my writing thankfully that mood passed and my feelings towards blogging when back to normal.
The thing is I've always knowing people blog for all sorts of different reasons whither it be to make money, to receive free stuff, or because they love writing , whatever that reason may be, they blogs are all grouped into niches, I've always felt like the black sheep, like I don't really belong anywhere part of me longs for a niche to welcome me with open arms, a group that will encourage and support me to keep on writing but then the other part of me doesn't. I admit I write tiny snippets from all sorts of different niches but I don't want to dedicate my whole blog to one niche because that's not me that's not the reason I started this blog, I know barely anything about blogging truthfully I didn't even know niches excited until a few months ago.
Back in October when I wrote for Bio-oils scars uncovered campaign I started receiving email's offering me free stuff in return for posts ,I sat for many weeks toing and froing with the whole idea, I started wondering was I missing out since I was refusing to entertain the idea of sponsored posts and brand collaborations. In fact several other bloggers told me I was missing out that I could earn easy cash doing something I love and in return drive more traffic to my blog its a win all round right ? I'm not going to lie writing for Bio- oils campaign drove an overwhelming amount of traffic which was something I hadn't experienced before my inbox full of lovely responses from others showing pictures of scars and a story behind them something I took great comfort in, I wasn't the only one looking in the mirror and feeling shit about my scar battered body but writing about things like vapour pipes and coffee body scrubs just isn't my cup of tea.
The thing is I don't want to loose sight of why I set up this page I don't want to write content for content sake so I can be accepted in the world of blogging to be welcomed into a niche or to even gain a high rank on Goggle, ( I actually have no clue how any that stuff works btw) it's pretty simple I don't want to get sucked into blogging to make money or to receive free things it's like I've been offered a job promotion I didn't apply for I wrote for the scars uncovered campaign because I love writing about things I'm passionate about its no secret that I hate my scars not just because they look ugly it's a painful reminder of my past but a past I felt could help others, help them accept their scars and even their past. Through that post I was able to vent emotionally how my own scars affected my life and what they meant to me. But I didn't get paid for it I got free bottles of bio oil as a kind of payment for supporting the campaign the rest were sent out as a giveaway to help others come to terms with their ones too.
For anyone who doesn't know I started this blog 3 years ago the day my second heart ablation failed it sounds crazy I know not many people sit after surgery and think I know life's shit lets write about it but I did. Anyway here I was in hospital staring out the window watching the world go by literally passing me by as I lay in hospital a blubbering snottery mess, I felt like I had no real place in it. All these people were outside, walking, smoking, chatting in little groups putting money into the parking meter I felt like they all had a life a purpose all I had was a shitty diagnose with no hope of a cure, I was grieving over a life I wanted, I was mad, pissed at life words just started flowing It didn't have a reason, it served no purpose I just took every piece of my heart that felt broken and shoved it into words they words eventually became the posts you read here. Weeks and months passed were anything I felt anything I wanted to say I used it as an outlet for my emotions I admit some of the posts I published I'm embarrassed about I've even swayed with the whole idea of hitting delete but I haven't because there all reminders of hard times during my heart journey were I look back and think god I remember that, that was shit and then I move on I move on with a sense of delight because it's in the passed a passed I lived survived and came out the other side 10 times stronger.
Sometimes mentally I struggle, I just need a little swift kick up the backside my blog gives me that, I find myself reading back just to remind myself how far I've come in a strange way I still find things hard to believe, I still struggle to believe that when I was pregnant I got induced 3 times 3 weeks early and my darling stubborn Kian was still 2 days late because seriously does that even happen ? It did, because it happened to me, happened all because of my shirty Inappropriate heart But someone somewhere might have that same shit luck (if you can call it that baby's are blessings) but they might just land on that page it might be all they need to hear that day just to stop the tears flowing. I know it now makes me laugh.
Its funny because people say its all about your attitude towards life, you just need to be positive, as cliche as it sounds turn that frown upside down, they'll tell you everything happens for a reason, to be grateful for the life you have because some people have it so much worse but at that point in true Danielle drama style I felt like nobody could be worse, at the age of 22 I was diagnosed with a heart rhythm problem and told there's nothing that can be done they didn't know how to fix it, if they ever could, I was going to spent the rest of my life calling into work sick never having enough money to pay the bills pondering over how crap life is mostly from the floor with my legs propped up higher than my heart but strangely fast forward a year later it became so much worse if only back than I knew that But the thing is I did just that I turned that frown upside down and started writing to help others and I haven't stopped doing that.
What I didn't realise when I first started blogging was how much it would help others faced with the same condition, through the struggles I shared I was always met with positive comments, words of encouragement, gained 1000 of likes even made new friends. My inbox was and still is always full of lovely messages asking all sorts of advice from ablations to anxiety, pacemakers to pregnancy the list goes on but I love it. It was at this point I realised I could really help others, I could give others all the advice and information I wish I had knowing back then but didn't I'm no heart expert I'm not even a doctor but by sharing the things that happened, the obstacles I came across with having this shitty condition I could give support, the support and shoulder I didn't have but wished I had all those years ago. I've come to love the feeling of writing knowing it can help others going through the same struggles because truthfully I never want anyone to feel like I did 3 years when I started this blog I was a wreck I was alone, scared stuck in this invisible illness bubble were I felt like nobody could understand what it's like to live a life with your heart controlling it day in and day out, in fact the day I was diagnosed I hadn't heard anyone else refer to their heart as Inappropriate.
What I recently realised was I'm not only helping others but advocating for heart rhythm problems as a whole I have a rare condition that many medical professionals don't understand, some haven't even heard of it I've been on the end of doctors harsh ,rude comments so many times, the end were you start to question are you really sick or just crazy But I've decided the more I write the more awareness that brings and therefore I figured less ignorant individuals in the world.
However I guess what I'm trying to say is screw fitting in its nice to be different this tiny place on the Internet is an outlet for me it's kind of like therapy when my heart goes haywire, I'm sorry that I'm not sharing beauty hauls or taking perfect food pictures just so I can fit in, if that's what your after you've came to the wrong place. I'm a blogger without a niche. I wear my heart on my sleeve I don't hide anything in real life or on online, I put myself and my blog out there not just abit I fully put it out there for people to judge, criticise , pull apart but to help others, to raise awareness I figured if I don't advocate for my condition who will ? I'm the blogger without an identity, I'm opinionated, but honest I'm not your perfect size woman, or plus size model, I'm a mum with a heart rhythm problem, my mouth is just as inappropriate as my heart is but I'm just me, Danielle
So here I was sitting last night scrolling through all they emails sending the same reply to them all thank you but no thank you, it was great because suddenly I felt a sense of relief I found myself staring at my laptop missing this blog missing writing and remembering why I started it all in the first place and fitting in isn't one of them.
Sorry, not sorry that I don't fit in.
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Thursday, 29 December 2016
The long list of words I mutter daily to my 2 year old is incredibly long.
'I can't it hurts
running away makes mummy very sad
No we can't go upstairs
Stop, Mummy can't keep up
Will you just behave
Don't run off mummy cant catch you if a car comes
I need you to slow down'
'Please slow down little one'
Since my little boy Kian started to walk the day of his first birthday he well and truly made his entrance in style he came strolling through swaying the unsteadiness in his legs a huge cheesy grin across his face, his first proper steps he was determined to run before he could walk I watched with such delight, a proud mummy moment, yet suddenly out my mouth came the words
'Please slow down'
From that day is speed of walking and running grow exactly like he did as a mum I watched and cherished these moments, everytime he ran with a huge smile on his face that brought an even bigger one to mine as he copies Mr Tumbles on the television touching his nose blinking three times jumping high in the air my heart bursts with so much pride,ever fall I kiss the graze on his knee better the tears stop flowing and he replies all gone, his arms and hands reach out to show me it's all gone.
'Please slow down' were the dreaded words I spoke a lot
From rushing up and downstairs, running along the street to the park, taking off like Wreck it Ralph in the supermarket his short but able legs always full of energy, his mind always racing with mischief everywhere we go is always full steam ahead even to the toaster in the morning.
'Please slow down mummy can't keep up'
Having arthritis in my knee winter and the cold is a huge culprit at making my knee feel worse everything we done in the summer, the long walks to feed the ducks doesn't happen, going to toddler groups I sigh its shut as I secretly stand at the washing machine and cry for telling little white lies, everything on our to do list gets moved to the don't do list shoving him in the pram and walking slowly is now how the eventful shopping trip starts 'bad mummy' he shouts loudly the once happy face replaced with sadness the guilt hits hard eventually I give in.
'Please slow down' I would still shout trailing at the back passers by shaking their heads moving trolleys to avoid hitting him, physically I cant keep up he's faster than me I sobbed one night I can't do this I can't deal with strangers judging me staring because I let him run wild. He doesn't understand was a phrase I started to hear a lot he's just a baby having fun, learning I would bite my tongue longing for the day he did understand, longing for the day it would all get easier.
I'm still learning how to approach these moments of mummy 'can't', explain to him why ? how do I tell him that mummy has a bad knee and one day will need a new one, how do I go about telling him mummy has a pacemaker inside her chest ? do I let him feel it ? show him its different to help him understand, do I tell him mummy's a bit like a superhero with a magic battery ? make it sound fun, special, ? every superhero eventually needs a new knee. Yet how can I make out mummy's this amazing superhero yet she cant even walk up a flight of stairs properly let alone pull out webs from her hands and climb up the side of tall buildings, how can I eventually tell him when the time right all batteries run out exactly like the phone he puts on charge to phone daddy at work does, expect its not as simple as plugging mummy into the wall, without him fearing it, without him asking too many questions giving answers that I never want to explain, machines can go wrong like the battery's which leaked in his favourite toy dinosaur, that caused him to cry for days when I told him it was broken and we needed to get a new one but yet its important, its important to me that he understands that mummy's not being bad, boring or grumpy she simply can't, so he learns god forbid something goes wrong he understands it will all be ok with a simple few clicks from a special computer at the hospital a superhero always springs back but even the greatest superheroes need a rest sometimes.
'Everyone has a part of themselves they hide even from those they love the most'
Kissing his forehead goodnight I sat on the edge of his toy box bad mummy stuck on my brain, I will try little boy, really I will try, to stop being boring, grumpy, I will let you run around free, let you have fun, let you be curious, let you learn, forever I will keep this secret locked inside your eyes tightly shut to protect you from ever knowing that mummy's no superhero she couldn't be any further away from a superhero if she tried, mummy's more like Bambi on ice who most days can barely put one foot in front of the other.
I promise I will try and never say slow down again, I whispered to him that night because my sweet little boy you will always be quicker than me.
I admit I'm still adjusting to this accepting he's growing up, accepting it's always going to be a challenge, I'm still learning how to control the fear when he takes off and I can't keep up, god I'm even trying to stop caring what others think when I look like a mum who has no control over her son, I should of knew this day would come but I didn't in the whirlwind of the first year of being a new mum I didn't ever think that far ahead unfortunately there's no textbook with a how to guide on keeping up with toddlers when you have bad knees and a battery powered heart.
A few days later in an ironic but sad sort of way, waiting for his Nana to pick him up I explained mummy had to see the doctor with her sore knee grabbing his shoes he gave me a little wave his face full of delight and smiles for his afternoon full of adventures with someone who can run and jump, who can do everything he wishes mummy could do but can't, as he went to run off he stopped in his tracks smiled leaned down and kissed my knee all gone he said.
As he went out the door my heart ached for the wrong reason he did understand in the mind of a 2 year old a kiss makes everything better he had only learned what I had taught him a kiss made his knee better so it should make mummy's better too, its so true he doesn't understand that a kiss cant fix everything but my sweet little kian how I wish you didn't ever have to understand a kiss cant always fix everything but sometimes a kiss from the right person is sometimes all you need, I will always keep you believing kissing a sore knee really does make it all gone.
Sunday, 18 December 2016
Christmas is full of joy and happiness from Christmas parties to Christmas markets,Santa's grotto With his cute little elves and reindeers, the cliche Christmas films that bombard the television, being aloud to eat and drink your body weight in chocolate and mulled wine, Christmas has a special meaning to us all.
Christmas is just round the corner, Its the one time of year to hang pretty stockings up on the fireplace, tie glittery tinsel around the tree, cook and have your home smelling of mince pies and cinnamon, its officially the most wonderful time of the year, you sit by the fireplace with a mulled wine in your hand, tucking into your pintrest picture gingerbread house as Christmas trees overpower social media, every Channel you flick through plays a Christmas movie, from love and mistletoe, to snow and magic, Kindness and goodwill, These movies show us what Christmas is all about but if you didn't already know, I'm sorry to be the one to tell you this isn't always the case.lets get real me and my husband definitely don't communicate with our hearts even after 5 years of marriage, I live in miserable cold Scotland but I've yet to see a white Christmas, nobody EVER in my street decorates with so many lights that you can see their house from space why ? Because movies aren't real life, they show us high unrealistic expectations about Christmas. Christmas is pretty stressful and overwhelming for the average person so for those living with Inappropriate Sinus Tachycardia or any chronic condition for that matter Christmas adds more stress and worry to our already tachy hearts it pushes our bodies and our ability to cope to a completely different level.
Christmas to us is a bit like a coin, if we grab our party shoes and head to the Christmas parties, we sure will pay for it later and I'm not just taking a hangover in the morning or an empty purse, if we hit the busy shops for Christmas shopping, its like recovering from minor surgery, the heat from the fire makes you want to lie on the cold floor with your feet above your head or is that just me ? but on the other side of the coin, if we don't do all these things we end up feeling isolated, those closest to you struggle to understand that our fast hearts can't stand in long queues in a hot busy shop or the amount of alcohol and chocolate you 'should' consume since its Christmas sets our hearts off, if we don't make it out to the shops and give that perfect gift or join the secret Santa club a huge pat on the back for being a bah humbug.
Christmas can bring so much resentment and disappointment that our Christmas isn't quite turning out exctly the way we want it to, exactly like the way it does in movies, Christmas is more daunting than joyful trust me I know. Christmas to me is ultimately about family and laughter giving than receiving being thankful and grateful for everything I have, but since family is such an important thing to me at Christmas and I'm not just talking giving superficial things like gifts, I want to spend it with all of them, give a large chunk of myself to sit round the breakfast and dinner table and unless I cut myself into 4 pieces its never going to happen The pass few years have been spent dividing time between them all rushing back and forth trying to please everyone, Christmas didn't feel special it felt like a chore. This year I decided it was going to be different it wasn't going to feel like a chore because it shouldn't, instead I tried to do everything to make it magical for a 2 year old but I didn't drag my backside to the shops quite the opposite I had to drag my sorry ass' to the doctors followed by the hospital because I've now been stuck in bed suffering from dehydration and an infection with my heart going even more crazy, 'take it easy you don't want to be ill for Christmas' the doctor said I did have to slow down, burning the candle at all ends trying to make Christmas perfect is stupid,health is more important than any Christmas dinner or gift.
Health is the greatest gift anyone could ask for, a gift that we can give ourselves if we allow the exceptions of what Christmas should be like to fall by the wayside, real life isn't a movie and you just need to remember that, I definitely had to remember that, so its brought me to share, these 2 simple tips it might not cure our health but mentally I hope they help of course just don't forget to spread some Christmas cheer by singing loud for all to hear.
Your not Nigella Lawson as much as you would like to be
In a ideal world we all want to be as perfect as Nigella Lawson in our tight red dress presenting the best Christmas dish, washed down with Christmas cup cocktails followed by Nutella cheesecake, My husband has a huge crush on her so the pressures on every year for me to be perfect Nigella but sadly that doesn't always work when you don't have the time strength or energy there's no harm in picking up a turkey from the supermarket or my good old favourite pick up the phone and order a Chinese. In my opinion you don't always need a Christmas dinner to complete Christmas when your surrounded by family and love.
Give from the heart, it doesn't cost a penny.
Gifts from the heart are often cherished more,give yourself in ways your able,spend quality time with those you love from the comfort of your own home, those who care will understand and those who don't, don't matter, Christmas is all about kindness isn't it? Even frame a beautiful picture that you know will earn a special place in someone's heart and home if you can't be there in person at least a happy memory will.
Most importantly no matter how your heart is feeling don't let it ruin your Christmas if you surround yourself with laughter and kindness its a sure way to take your mind off how fast its beating.
Happy Christmas when It comes ! Xx
You can find me in all these other places
Wednesday, 16 November 2016
What's brought me to write this post is I need another operation, god even when I say that word I feel sick, my palms start to sweat, my heart races and I want to cry. As soon as she pulled the x rays up on the screen and asked me to look at them I knew what she was going to say before she even spoke.
The surgery I need is pretty minor, my wisdom tooth is impacted and stuck in my jaw bone so it's having to be surgically removed but my heart problems smacked me in the face, their concerned my heart will go crazy, it beats crazy fast all the time anyway so I guess it wasn't rocket science to figure out, that it's not going to behave during surgery, so I have been sent to another hospital miles from home but one were there's doctors who are able to give me medication to knock me out so I'm not aware of the surgery,You would think this oral surgeon would have gained my trust taking all these precautions.
She asked if I get anxious about going to the dentist, I didn't want to act like a big baby so I asked her if there was anyway it could be left, I told her my mind and body don't feel ready for another operation, but the damage has already started, because my wisdom tooth is impacted its starting to cause tooth decay and it's also starting to rot the healthy tooth next to it so not only does my wisdom tooth need to be surgically removed I will also have to go back to the dentist and get root canal treatment on the tooth next to it so leaving it wasn't an option.
As she pointed at the x-ray I was suddenly reminded of everything that went wrong with my heart, the nerve damage I live with everyday, my heart being damaged during my ablation, where my tooth is, its beside a huge nerve so there's a risk of permanent nerve damage. I find it so hard to trust medical professionals, I don't mean it in a bad sort of way, but I always believed they fixed things, made things better, I find it so difficult to let down my guard and trust everything will be ok, I guess my trust issues stem from everything with my heart.
I do forget all the bad things that happened with my heart but its like my body remembers, it keeps it stuffed away until something triggers it. Whether it be a sound, something I see, a word or a person it awakens me to it all. Right now it's not even about needing an operation, or the pain after its everything that happened in the past, I've built up a wall, a huge defence mechanism to ensure trust isn't lost again but needing another operation I'm having to tear that wall down and its something that I'm finding incredibly difficult. truthfully I'm terrified something will go wrong.
Going through so much getting ablation after ablation that didn't work, it changes you, getting a pacemaker it changes you, each tablet changes you, everything that goes wrong it changes you, you lose hope but you start to loose so much trust, you feel like your constantly shoved on the end no matter how much you kick or scream, on the end were you have to put trust in people to fix you, to make you better, we constantly have to let down our guard, put our full trust in others and its scary.
When I got my pacemaker I wasn't crying because of the pain or the experience, I was in tears because I heard 'trust me he's a good cardiologist', I heard that from so many doctors, but yet he couldn't fix mine, he tried 3 times and eventually damaged it, a huge risk that was put out there but one you don't think will actually happen, so how can you trust when trusts already been broken.
Trust is something that can be hard for a lot of us, the other day my friend who's a nurse, ironically she works in a surgical ward she sees people get fixed, get better all the time, sick people put their trust in her everyday but the funny thing is she also needs surgery and over a cuppa she asked me how do I do it ? how do I trust everything will be ok ? how do I manage to put trust in others to look after you? it brought me to notice everyone has trust issues when it comes to our health, when it comes down to trusting doctors to fix you, make you better while you're in a vulnerable state its terrifying.
Trust is like paper once its been crumpled it can't be perfect again but if I've learned anything about having so many operations its just how strong we are as human beings, we DO put our trust in others despite how hard it all is, we dig deep and find the strength and courage within us because we have no choice our body needs this now but we know it wouldn't be forever, most importantly we have to surround ourselves with people who have gained our trust especially when trust is so hard to earn, when you surround yourself with the right people nothing can truly go wrong even when you fear it all will.
As my pre op to make sure am fit for surgery draws closer, (it's the start of December) I'm worrying the actual surgery will be before Christmas. I feel this huge chunk of happiness drain out of me Christmas is a time to celebrate and be close to loved ones and a lot of my Christmases have been spent being unwell or recovering from surgery, it was only last year I was stuck in bed with an infected pacemaker part of me thought I would be ok this Christmas, I would be able to enjoy it, I didn't think another operation would be on the cards, I'm devastated by it, there's always something else, always something wrong with my body, sometimes it feels like there's not a part of it that's right.
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Sunday, 13 November 2016
People like me don't get depressed, depression doesn't affect people like me, I'm always smiling, happy, always the first to make a joke out of a bad situation, if you hand me lemons I'm the first to grab a large glass and make a gin and tonic full to the rim, I'm naturally an optimist.
People like me are always 'good thanks' always lending a shoulder for someone else to cry on !
I remember the first time I opened up to a friend about how I felt how I was diagnosed with anxiety and depression "how can you be depressed" stab right through the heart she didn't mean it in a nasty way she was asking a simple question she sat glaring waiting for a reply, I couldn't answer. I seem to have everything a husband who loves and cares for me a healthy little boy,who's smile brings so much joy, I have a house, a job I go on nice holidays, I'm surrounded by so many people who love and care about me what more could anyone want ? I GET IT totally. But I didn't have the one thing most people do have I didn't really have good health,my heart doesn't beat properly now it barely bests on its own at all it mentally that hurts.
Money can buy a Ferrari right ? and you can have the luxury of crying in your flashy Ferrari but money doesn't bring you happiness nor does it pay for someone to sit with you and take your hand in the car. As selfish as it may sound I have all these things ( not the Ferrari btw) but you get the picture was it acceptable to be sad, to my friend its like it wasn't, It's like because I had all these things my life wasn't bad enough to be depressing, The worst part was I felt I wasn't as lucky as everyone else I didn't have my health to enjoy all the things I was blessed to have, things that do play a huge part in happiness.
' I have this happy personality and a sad soul in one body. It feels weird sometimes'
It was like a Pandora's box had been opened with so many different emotions and I didn't know to deal with them I didn't know to deal with sadness, it was an emotion I simply didn't understand. I felt like a burden to everyone around me I felt Like I was draining the life and happiness out of everyone exactly like my condition was doing to me, most days my heart didn't allow me to get up and go to work in the morning like everyone else did It didn't let me just be me, be a mum, I even thought at one stage life would be easier for everyone if I wasn't around if I packed a bag and ran away hopefully the sadness doll in my head wouldn't follow at the back I grow tiered of living in a body that's damaged and can't be repaired things I would normally carry in my stride I couldn't anymore, every setback every difficult moment,anything that went wrong it,tore another huge chunk out of my sanity and it's like one day a light was switched off my able-bodied legs gave way from underneath me and I fell into complete darkness alone.
With depression I always imagined someone looking sad and miserable someone who lay in bed and cried everyday, someone who if I handed the glass of gin and tonic to, would just see the glass half empty, I basically imagined the doll sadness from the film inside out someone who's smart but yet pessimistic and negative all the time that the best and only thing to do in life is to lie around and cry over everything, That person wasn't me In fact I rarely cried it's like my tear ducts didn't work exactly like my heart didn't, I just felt numb, I didn't lie in bed crying everyday Instead I woke up in the morning just to go back to bed again at night it's like there wasn't any purpose to life.
When I was diagnosed with anxiety and depression, I couldn't accept it I didn't believe it, I felt sad but I used to think the sadness I felt was nothing compared to what depression feels like, if what I was feeling was even half of what Depression feels like it's such a horrible lonely place to be in but I wasn't depressed , I couldn't imagine what having Depression was like because it doesn't happen to people like me. Part of me even felt ashamed for feeling the way I did but I couldn't find the switch to turn the light back on I didn't even know were to start looking, it just sort of became a part of me, a part I didn't really like but I Just had to get along with anyway. I've had people close to me suffer from lots of different mental health issues, I didn't judge them, I just felt compassion towards them I would help them but I just couldn't see myself with depression, how could someone who normally sees all the positives in life just see negatives it's like my rose-tinted glasses had fallen off.
My Nana always used to tell your minds a strong powerful thing and that you shouldn't judge someone else's mind because you never really know what's going on inside it the ironic thing was the first time I witnessed mental health it was with her, she had bipolar and a few years down the line she was diagnosed with dementia, that saying she always told me stuck, it made me compassionate to others who were going through things I didn't understand Especially mental health, you don't judge someones mind when you don't understand what's going on inside it.
Yet here I was comparing the doll sadness from a film linking her to what people depression look and act like. I was so wrong to do that, it took a doctor telling me my sadness was depression she saluted me for holding it together for as long as I did, like I deserved a badge of honour, a badge I felt I didn't deserve to wear, because I still didn't believe my sadness was depression. It took that for me to recognise depression has so many different faces and forms, mental health can affect anyone it doesn't matter if your fat or thin, rich or poor, it doesn't care if your male or female nothing matters,it is what it is, it strikes without warning and takes over your life, You can't help the way you feel, you can't just snap out of being sad, there's not a happy pill that you can take which instantly lifts your mood so your happy, It takes going to hell first, lying in hells bottomless pit to eventually reach the white cloud up in heaven.
Admitting it wasn't easy nothing is easy about accepting you have a mental health problem nothing was easy about going further down the rabbit hole taking tablets that make you feel worse before they made you feel better but yet admitting it and accepting it was like a release button had been pressed it finally made me let go, I wasn't dealing with it alone now it was out in the open accepting depression eventually brought true peace because I seeked helped and was open and honest about how I felt. Sharing all my emotions online with strangers took courage, I feared being judged, because there's so much stigma surrounding mental health.I feared people I know reading because I didn't want people to pity me, that was the furthest thing I wanted,when I felt like I had lost my voice and I couldn't speak writing was my greatest comfort because truthfully I didn't know how to cope with the feeling of sadness, it was an emotion that I simply didn't understand why it had effected me the way it did an emotion that I wanted rid of, I wanted my own joy doll to come running with open arms and save me from the sadness that had invaded my head.
As much as I've hesitated over this post, because people will judge it's inevitable but if people like me don't open up about the reality of mental health the stigma surrounding it will always be the same. One voice is like a small drop in the ocean but all together it creates a huge wave speaking up about depressing has the Power and the ability to change what people think and see.
I always thought it wouldn't affect me, people like me don't get depressed, till it did. Life's likes a bottle the bottle eventually becomes full the lid explodes and sometimes you just need help to start filling it back up again, it's ok to ask for help,it's ok not to be ok, it's ok for nobody to understand because you don't understand what's going on in your head either. Keeping it hidden on the inside feels like the safest place for it to stay but actually there's nothing safe about it you just end up feeling like your drowning in sorrow while everyone else is breathing around you.
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Monday, 31 October 2016
Whenever I told anyone, I'm getting Chilli Pepper patches to help my nerve pain you can imagine the weird looks I was met with, I mean Chilli Pepper to help nerve pain. ? but yep you heard it right, lyrically chilli pepper, it wasn't a case of standing in the hospital while the doctor crushed up chilli from the local supermarket, It came prepared in a small patch (a very hot patch)
Back in March when my infected pacemaker was removed I've suffered from pain, my cardiologist refered me to see a pain specialist and spoke with a plastic surgeon who both diagnosed the pain I was experiencing as nerve damage, Since then I've been placed on a variety of medication and painkillers to help combat the pain, the huge problem was these drugs are ok to take now, but being young and wanting more children in the future, that kind of threw a spanner in the works. All the medication I'm on isn't safe to take during pregnancy, I also didn't want to be on painkillers long term.
A few months back I happened to stumble upon the program 'the doctor who gave up drugs' were the doctor in the program Chris van Tulleken stopped patients from talking painkillers and instead tried other methods, part of me felt this huge weight of worry, I was scared that was the route the pain specialist was going to go down, scared of the unknowing, scared of suffering pain and nobody helping me, I could see the pain in the girls eyes in the program knowing exactly how she feels, knowing that must be torture.
As I swallow Tramadol, Macklemore's new song 'Drug dealer' plays in my head I sing this song at the top of my lungs as I'm hanging up the washing, it's one of they songs that its tune struck a chord but suddenly a horrible feeling hits my stomach , because as much as I like this song he paints a picture of drug abusers but blurs out people like me who have chronic pain people like me who don't want to take pain medication but have no choice, the pains to much, one of the tablets I'm on Gabapentin isn't just one tablet a day it's split up into taking 3 a day and the side effects are nasty, one day as I woke up, for a split second It felt like I was falling, as though the bed I was lying on had disappeared from underneath me or another night, As I woke Dougie in the middle of the night, I told him something was wrong with my body, because the numbness and tingling was horrible, the left side of my body was completely numb, its like my arm and leg weren't attached, the tingling hits me as I sit in the car as I try everything to bring the feeling back to my body, but without them I cannot function, the pain hits me hard, it takes my breath away and I end up crying real snottery tears. When I first met the pain specialist he told me sometimes nerve pain gets better as time goes on,but most of the time it didn't and it was most likely I was going to have this pain for the rest of my life, that was hard to swallow, it took a while for it sink in, he did go down the route I thought he might like Chris the doctor in the program, but instead he mentioned Chilli pepper patches and figured it was worth a try, I didn't have anything to loose, he warned me it was painful and if it didn't work we would cross that path when it came to it, I could still take tablets if need be until the time comes when I want another baby.
Now I understand your probably reading this and thinking how can Chilli Pepper get rid of nerve pain So I thought I would explain it all here.
The patches contain the active ingredient Capsaicin which is the natural substance found in red chili peppers which gives them their heat. Capsaicin works by desensitising the sensory receptors found at the end of nerves. When activated by painful stimuli they send nerve signals to the spinal cord and brain that results in the perception of pain, but when capsacin binds to these pain receptors it initially causes a painful burning sensation, but with continued use of capsaicin the pain receptors become overloaded and eventually they desensitise which makes them less responsive to painful stimulation this is what relieves the nerve pain. (http://www.netdoctor.co.uk/medicines/aches-and-pains/a8755/qutenza-patches-capsaicin/)
So I had my first patch placed last Thursday, the patch was placed by a nurse and was to be left in place for an hour, an hours nothing right so I kept telling myself , but it was the longest hour of my life, when she asked if I wanted a cuppa or would I like to go for a wander and come back in an hour,(sooner if I feel the pains to much) which straight away I didn't like the sound of but I figured how sore and hot could one patch be, I mean one small patch would be nothing right, a walk in the park compared to 3 ablations, when it was first placed it didn't feel like anything. Dougie knowing me better than I know myself said we will go for a walk, which I'm so glad we did,slowly I felt the skin under the patch get hotter and hotter until it was burning hot, red and itchy, We walked round the charity shops beside the hospital which took my mind off how much it felt like my skin was on fire, as Dougie pointed out nice dresses, something he never does but I think my facial expression said it all as I was stupidly waving my jacket like a fan over my chest trying to cool it with the cold air. I think if I had sat drinking tea it would of been a completely different story, this is the reason I drag Dougie to appointments like this for that purpose because without him, I would of been crying even more snottery tears and the patch wouldn't have lasted half an hour let alone an hour As we returned back to the hospital the nurse looked at me and said how was it ? your still smiling anyway so it can't be that bad there's still another 10 Min's to go, 10 minutes which I sat on the end of the bed biting my tongue for as she explained to Dougie what the patch does.
Its still early days to know if they've been successful or not at helping my nerve pain it takes 2 weeks to feel the full effects but fingers and toes crossed it works, the pain's still there although not as bad and the stingy pain that random hits hasn't so its defiantly doing something, if they do work I will have to brave it all again in 12 weeks. It's amazing that there's so much out there that can help pain not just drugs that you don't hear or even know about, I mean I hadn't ever heard of chilli patches.
If you have nerve pain don't let my experience of the pain put you off, its like having really bad sunburn for 2 days and then it disappears, as much as It hurt I'm definitely going to give it another shot, so if your like me and have nerve damage and pain, ask about chilli pepper patches there worth a go, a pain specialist who specialises in nerve pain is the person to get in touch with who can assess and guide you.
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