Showing posts with label #surgery. Show all posts
Showing posts with label #surgery. Show all posts

Wednesday, 16 November 2016

Trust is like paper once its been crumpled it can't be perfect again







What's brought me to write this post is I need another operation, god even when I say that word I feel sick, my palms start to sweat, my heart races and I want to cry. As soon as she pulled the x rays up on the screen and asked me to look at them I knew what she was going to say before she even spoke.

The surgery I need is pretty minor, my wisdom tooth is impacted and stuck in my jaw bone so it's having to be surgically removed but my heart problems smacked me in the face, their concerned my heart will go crazy, it beats crazy fast all the time anyway so I guess it wasn't rocket science to figure out, that it's not going to behave during surgery, so I have been sent to another hospital miles from home but one were there's doctors who are able to give me medication to knock me out so I'm not aware of the surgery,You would think this oral surgeon would have gained my trust taking all these precautions.

She asked if I get anxious about going to the dentist, I didn't want to act like a big baby so I asked her if there was anyway it could be left, I told her my mind and body don't feel ready for another operation, but the damage has already started, because my wisdom tooth is impacted its starting to cause tooth decay and it's also starting to rot the healthy tooth next to it so not only does my wisdom tooth need to be surgically removed I will also have to go back to the dentist and get root canal treatment on the tooth next to it so leaving it wasn't an option.

As she pointed at the x-ray I was suddenly reminded of everything that went wrong with my heart, the nerve damage I live with everyday, my heart being damaged during my ablation, where my tooth is, its beside a huge nerve so there's a risk of permanent nerve damage. I find it so hard to trust medical professionals, I don't mean it in a bad sort of way, but I always believed they fixed things, made things better, I find it so difficult to let down my guard and trust everything will be ok, I guess my trust issues stem from everything with my heart.


 I do forget all the bad things that happened with my heart but its like my body remembers, it keeps it stuffed away until something triggers it. Whether it be a sound, something I see, a word or a person it awakens me to it all. Right now it's not even about needing an operation, or the pain after its everything that happened in the past, I've built up a wall, a huge defence mechanism to ensure trust isn't lost again but needing another operation I'm having to tear that wall down and its something that I'm finding incredibly difficult. truthfully I'm terrified something will go wrong.



Going through so much getting ablation after ablation that didn't work, it changes you, getting a pacemaker it changes you, each tablet changes you, everything that goes wrong it changes you, you lose hope but you start to loose so much trust, you feel like your constantly shoved on the end no matter how much you kick or scream, on the end were you have to put trust in people to fix you, to make you better, we constantly have to let down our guard, put our full trust in others and its scary.

When I got my pacemaker I wasn't crying because of the pain or the experience, I was in tears because I heard 'trust me he's a good cardiologist', I heard that from so many doctors, but yet he couldn't fix mine, he tried  3 times and eventually damaged it, a huge risk that was put out there but one you don't think will actually happen, so how can you trust when trusts already been broken.

Trust is something that can be hard for a lot of us, the other day my friend who's a nurse, ironically she works in a surgical ward she sees people get fixed, get better all the time, sick people put their trust in her everyday but the funny thing is she also needs surgery and over a cuppa she asked me how do I do it ? how do I trust everything will be ok ? how do I manage to put trust in others to look after you? it brought me to notice everyone has trust issues when it comes to our health, when it comes down to trusting doctors to fix you, make you better while you're in a vulnerable state its terrifying.

Trust is like paper once its been crumpled it can't be perfect again but if I've learned anything about having so many operations its just how strong we are as human beings, we DO put our trust in others despite how hard it all is, we dig deep and find the strength and courage within us because we have no choice our body needs this now but we know it wouldn't be forever, most importantly we have to surround ourselves with people who have gained our trust especially when trust is so hard to earn, when you surround yourself with the right people nothing can truly go wrong even when you fear it all will.

As my pre op to make sure am fit for surgery draws closer, (it's the start of December) I'm worrying the actual surgery will be before Christmas. I feel this huge chunk of happiness drain out of me Christmas is a time to celebrate and be close to loved ones and a lot of my Christmases have been spent being unwell or recovering from surgery, it was only last year I was stuck in bed with an infected pacemaker part of me thought I would be ok this Christmas, I would be able to enjoy it, I didn't think another operation would be on the cards, I'm devastated by it, there's always something else, always something wrong with my body, sometimes it feels like there's not a part of it that's right.





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Wednesday, 30 March 2016

Its ok to be a big cry baby




 if the shooting pains in my chest were little sparks of light and the dull aching was a bright red glow. If you could see the fog swirling around my brain. If you took my hand or touched my shoulder and you could feel how heavy the weight is, if the sadness made me waste away and the fatigue swallowed me up... and I never woke up.
Maybe then you would believe me, wouldn't you ?      

 I found myself again in the same situation only a week later, sobbing and crying behind a curtain in my local accident and emergency, the frustrating of nobody knowing what was going on, nobody being able to tell me why I was still in pain, or why the fluid was still in my chest, it had been drained yet 7 days later it was back, as I left through the doors of the busy waiting room, I had just got up and left from the trolley I had been lying on in tears, I had simply had enough, you become tiered of not knowing what's going on with your body, the doctor's voice echoed as he tried to tell me I was leaving without painkillers, but I didn't want painkillers my whole body felt numb.

As I sobbed in the car on the way home the tune blasting out from the radio from one of my favorite songs,

                                                                   Where there is desire
                                                                  There is gonna be a flame  
                                                               Someone's bound to get burned
                                                                But just because it burns
                                                             Doesn't mean you're gonna die
                                                       You've gotta get up and try, and try, and try


They described exactly how I felt I knew deep down I knew I had to get up and try but inside I was emotional fed up and exhausted, I felt at breaking point.





Getting home things only got worse later that night I passed out in the hall, before hand me and Dougie had even joked as I kept saying maybe I should just pee the bed I was bursting but I knew getting up I would black out the way I was feeling, the dizziness ears ringing heart racing every time I stood up I would throw myself back into bed And I hate to even share this but poor Dougie was even looking for anything that I could use for me to pee in to save me getting up out of bed and greeted me with my lovely new vase maybe I should of just peed in the vase classy,I know but if you have this condition and been in this situation you will know exactly were I am coming from, but instead I really tried to get up with Dougie's help saying if I felt I was going to go I would just quickly lie on the floor but I failed miserably didn't make the toilet or the floor well I made the floor but by hitting it without trying. When the ambulance arrived I found myself again crying and this time refusing to go to the hospital something I have never done in my life, I just couldn't do it anymore nobody could give me answers so mentally it was like there was no point to anything, they decided to call a doctor out to the house.

Half an hour or so later I was greeted at the side of my bed by what was one of the nicest doctors, the first thing she asked me was why  I refused to go to hospital were again I just started crying and couldn't stop, she felt the lump of fluid and commented saying no wonder I was in pain the lump was stuck to my rib cage, giving me tablets to help me sleep, she was now on the case to get me sorted but at this time of night she simply couldn't because it needed the one person who knew my heart inside and out.

I was admitted the next day to the cardiac ward,  sat staring at a bunch of old ladies again, who actually thought I was a visitor at first, because your far to young to have heart problems I was so grateful to be sharing a room with they 4 lovely ladies they chatted away and made the whole stay that little bit nicer especially the way I was feeling being an emotional wreck.

My pacemaker was checked to make sure it wasn't failing and that had been the reason for my collapse, and a heart scan that thankfully were all fine so he decided to get a second opinion, as not only did he owe that to me but to himself as well, because he just didn't know what was going on, my results showed lots of inflammation and white blood cells but nothing stood out as a problem or why this fluid kept coming back, so the next day I was met with another cardiologist who specializes in pacemaker infections at first he spoke about opening it back up again, but  that brought more risks of messing with it all again and putting me at risk of infecting my new pacemaker so as much as it was a pain, really a pain in my rib cage, we went down the route of leaving it to see what would happen and hopefully eventually my body will break it down with antibiotics and of course my heart racing is completely normal for me.

    
                                                       




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Monday, 29 September 2014

Please just listen

Hey lovely readers



As I write this I just want to scream with frustration after feeling awesome and finishing my last ever shift at work on Friday I headed for my routine check up were midwifes monitor baby Urquhart and give me a scan to check the baby's movements and fluid which turned into me being admitted into hospital, everything was fine with the baby who seems pretty happy and the whole time during the scan was drinking and moving its little lips but the same old story with my health, except this time I didn't even feel unwell.

After the midwife taking my blood pressure which was high she spoke with the on call doctor who refused to let me home, the frustration I felt trying to explain my body and illness just went unnoticed. I even got the midwife to take my blood pressure lying down then when I sat up and how it got even higher to show them what my heart was doing and how this all seems to impact on my blood pressure, but the  obstetrician just wouldn't take any notice and even gave me more beta blockers despite me trying to tell her this was to much and it would all go back to normal once my heart slowed down ... anyway taking the extra dose after giving up .. guess what I was right my blood pressure dropped too low which resulted in them not letting me leave the department while waiting on a bed as they said they would probably have to come and pick me off the floor due to my blood pressure being so low. This made me feel so angry I am not a doctor but I know my own body and felt if they had listen to me explaining that my heart seems to impact on my blood pressure none of this would of happened.




IST frustrates me in so many ways that medical staff don't seem to understand it and the doctor who just kept saying I didn't understand how bad this blood pressure was for me or the baby... clearly didn't understand anything about IST, so instead I spent the whole night and first day on my holidays in hospital. and after everything my blood pressure did just go back to normal. Feeling like no one would listen became to much for me and this time actually got so upset as I felt hopeless trying to explain it all to people who I felt just were not listening or wouldn't even try to understand what I was telling them. I have another check up on Tuesday and feel scared to go now as the fear of my heart beating fasting and my blood pressure increasing is going to result in me being admitted into hospital even though I feel good.

Apart from all the bad stuff we finally finished decorating baby Urquharts room and just have a few little bits and pieces to do.
 Baby's Little swing 33 weeks 7 weeks to go :)

 Baby Urquhart's Room fit for a little mr or mrs :)

Love and Hugs 



Thursday, 7 August 2014

Maybe then You would believe me ?

Hey Everyone





Invisible Illness <3







Hearing over and over again 'you look good' 'you look healthy'
I sometimes freeze and don't no what to say, maybe if you could see the bruises I feel, if they were blue, purple and green. If the burned skin blistered, or maybe even burned your skin too, If the tremors were more violent, if my sore muscles screamed louder and you could hear the cracking of my joints or the pounding in my head if the shooting pains in my chest were little sparks of light and the dull aching was a bright red glow. If you could see the fog swirling around my brain. If you took my hand or touched my shoulder and you could feel how heavy the weight is, if the sadness made me waste away and the fatigue swallowed me up... and I never woke up.
Maybe then you would believe me, wouldn't you ?



At the moment I feel In a constant battle me against my body, my passion and my dreams and what I want to do with my life against what I am physically able to do of all the problems in my life, the hurt pain and frustration there is one thing that bothers me the most and it is ignorance of people, having a condition that affects your life in so many ways is enough to deal with.

The reason for my rant today as recently I have been getting a lot of stares as YES I am registered with a disability something I don't shout at the top of my lungs not only do I suffer from ist that causes me to black out I also struggle with my mobility due to my knees, and the ignorant comments and snobby looks I have been receiving lately. My knees have became a lot worse with being pregnant and can only walk so far and then they start to swell and give way not to mention the pain, but heading to the shops the other day Dougie parked into a disabled bay something I don't normally do when I am feeling ok and not in to much pain, and the comments of
' When did being pregnant become a disability'
I have learned to accept people don't see invisible disabilities but sometimes wish people wouldn't be so narrow minded, my knees get me down more than having my heart issues as things I loved doing so much I have had to give up. Since my operation I have never been able to walk up stairs and have to rely on lifts, going swimming alone which helps my knees cannot be done and need to rely on Dougie as the battle of getting in and out the pool I cant do alone, Going on holiday I always wait to be the last on the plane due to my slow walking and having to go up the plane stairs one at a time, people might ask why I don't go when they call for elderly and children but I never like to be treated different and try and keep all the dignity I have left with my mobility, even learning to drive became a task having to switch to automatic ... with left footed pedals as I am now physically unable to move my right knee from pedals.

We are all human, we can not define normal so accept people for who they are, and remember "treat others how you, yourself would like to be treated".




Even on My hen Party I became a hooter Girl In a knee Brace <3













So all I am trying to say is that something visible shouldn't cause judgement and turn heads in society it should stop. And that an invisible disability shouldn't cause judgement either unless you know the full story. I'm going to leave you with this question. If you were judged, stared at or treated horrible by people because of a disability whether it be physical or not. How would you like it? How would you feel?

Thank you for reading. Please share and lets change the way the society thinks and their ignorance to disabilities.

Love and Hugs Danielle xxxx


 A Note Dougie Left at hospital once after just leaving the car to help me in because I couldn't walk far <3


The Knee Braces I have been in when knee has been Really sore











Sunday, 26 January 2014

Next Ablation !

So on Wednesday the 22nd of January I went into hospital for my next ablation were it started with blood, an achievement in its self, because My veins are terrible after 2 nurses trying with no success I was then took round to the lab were the cardiologist tried to put a venflon  in my arm for sedation and medication which was unsuccessful and after a few attempts gave up, So had to stay awake while he started the procedure which was awful :( but luckily they gave me the medication through my groin once they had gained access. This procedure was more painful than the last one as they used bigger catheters and special computers and after 3 and a half hours I was told the procedure was unsuccessful  and was also diagnosed with the condition Inappropriate Sinus Tachycardia. I was discharged and giving new tablets called Ivabradine to control my heart rhythm.
My New Medication !






Recovering From this ablation was harder and found it difficult to come to terms with  been diagnosed with such a horrible condition. I spent the first few days crying and been upset but the support off my friends and family have been amazing and want to do everything possible to help others cope with this condition. I am on day 3 of these new tablets and things are going ok so far.
A Get well card off my special friends.






More Gifts from my friends :)






High 5 to my cat Tinkerbell the day after ablation , someone had the friday feeling:)